Some of you know that I had a huge fit yesterday afternoon when the neurosurgeon's nurse said that the earliest Caleb could get in for a MRI was 2 weeks away. I have a child that has lost a lot of function in the last 3 weeks, there is no way I was going to wait 2 more weeks just to get a MRI. So, I had to turn into "mama bear" again and I insisted the nurse check with the doctor to see if he was okay with Caleb waiting 2 weeks for the MRI. I had decided that if the neurosurgeon was okay with the wait, then I would be too. The nurse called about an hour later to inform me that Caleb's MRI would be the next day. Now, whether the MRI was moved up because the neurosurgeon insisted or because they were just trying to make peace with me...I don't know. All I know is I got what I wanted.
Caleb, however, was less than thrilled to learn that he was having a MRI. He was so worried about the noise but I explained to him that he would sound asleep during the whole thing and wouldn't hear a peep. He handled everything surprisingly well, he didn't seem anxious or worried at all. Although, he did complain about not being able to eat.
Caleb carefully looking over the "flavors" for the silly gas. He chose bubble gum. They gave him a dose of versed first. That seemed to relax him a bit and made him a bit silly. It was pretty funny.
Playing the IPOD while he waited to be taken back.
It took about 2 hours before I got to see him again. He was pretty groggy and loopy when he woke up.
We see the neurosurgeon on Friday morning for the results. It's funny because I pushed so hard for things to move quickly and now that we are about to find out what is going on...I kinda want things to slow down. I don't want anything to be wrong, but I know something is. I want to know...but I don't want to know. I think my biggest fear is that we will be told that they can't find a reason for the loss of function, so there isn't anything they can do about it. Or that it will be something far worse than tethered cord. I'm nervous. I want to stick my head in the sand and just pretend that all is well. But we can't do that. So, we will see what Friday brings and we will handle it.
When I said, "My foot is slipping," your love, O LORD, supported me.
When anxiety was great within me, your consolation brought joy to my soul."
Psalm 94: 18-19
(and for the record, I did make that Chocolate Sheet cake)
(and for the record, I did make that Chocolate Sheet cake)
9 comments:
I'm sorry for your worries. I pray for something that can be fixed and healed quickly. Much love from our family to yours.
I'm glad you pushed not to wait. Our last MRI was an "omg I emailed the neurosurgeon and told him she had been falling, complaining of leg pain, very fatigued and slight tippy toe-ing again" and that landed us an MRI the next day.
Funny, that the initial one which could have caught her tethered cord was scheduled last Oct and done in late Jan (2011). Sigh. I can't even remember how many MRI's we've been through at this point. Did the hospital give you a copy of the MRI report or do they send it over to the dr?
I follow your blog but I haven't back read-everything. Our oldest DD had a tethered spinal cord that was mis-diagnosed and now has a neurogenic bladder and a host of other bladder issues, we were so sure it had re-tethered with her aforementioned symptoms but the last MRI was 'ok' We actually have another friday with contrast because her bladder is getting worse, not better.
I hope you get good news, I know what you mean about the reason vs well a reason. He is such a strong little boy and the release surgery is one of the 'easiest' spinal surgery's so i guess their's always that. Peyton couldn't talk yet when she had her's last July so that made it more difficult. I had to sleep in a crib.
Hugs.
Praying for you all. EF painted Caleb some pictures when I told her he was having an MRI. She's not a big fan of the test either.
Thinking of you guys tomorrow and saying a prayer that whatever they find can be easily managed...
hugs! I hope things go well.
I have been both encouraged and enjoyed reading your blog for the past few months. We have an 8mth old with sb and it is so comforting to know that there are other families going through hard days too. Please know that your family and esp. Caleb are in my prayers. Trusting that is capable and sufficient to walk us through whatever we face.
praying for peace for you guys as you await the results. hang in there!
praying for peace for you guys as you await the results. hang in there!
Praying for you guys!
XO, Ang and boys
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